Meet Our Committee

Elizabeth Beales – President

Elizabeth has OCA and Nystagmus was diagnosed with Albinism at the age of 40.    Liz is passionate about empowering persons with Albinism and also creating an accurate and positive perspective of Albinism in the media.

She lives in South Australia with her husband and four children.

 

Ted Thomas – Treasurer

Ted has OCA and Nystagmus and was diagnosed with Albinism as a baby.  Ted enjoys meeting and assisting new parents of children with Albinism.

Ted will be stepping down from Treasurer in June 2018 so if you are interested in becoming part of the AFA Committee we would very much like to hear from you!

 

Dannika Brittin – General Committee

Dannika’s connection to Albinism is through her youngest daughter Sophia.  Sophia is two years old and was diagnosed with OCA and Nystagmus when she was twelve weeks old.

She is passionate about being involved in changing the perception of people with Albinism and ensuring that parents of newly diagnosed children are given adequate resources and information to help them understand Albinism.

 

Sandra George – Conference Convenor, General Committee and Victorian State Representative

Sandra is grandmother to a child with Albinism and also one of two Victorian AFA Representatives. She is passionate about providing opportunities for the albinism community to meet, provide support, share information and most importantly to act as role models for children with albinism.

 

Marie Bedford – Assistant Secretary and General Committee

Marie was diagnosed with OCA when she was very small and has been a member of the AFA committee for eight years.

In her spare time she volunteers with the Association for the blind of WA now called VisAbility as a consumer committee member.

 

We are seeking people to assist in the running of the AFA, if you have skills that you feel would  be valuable to the fellowship or would simply love to give it a go, we want to hear from you. Contact us now!

 

AFA Committee 

Phone: 1300 22 16 19

President: Elizabeth Beales Email

Vice President:  Julie Derrett

Secretary:  Annette van Gent Email

Treasurer: Ted Thomas Email

Assistant Secretary / General Committee: Marie Bedford

General Committee:  Sandy George, Nicole Tobin, Belinda West, Dannika Brittin and Jennifer Rivett

Download Committee Position Descriptions. and AFA Constitution 

The AFA stands for self advocacy and we are proud that 6 of our 9 elected committee members have albinism, 3 are parents of children with albinism and 1 grandparent of a child with albinism.