Elizabeth has OCA and Nystagmus was diagnosed with Albinism at the age of 40. Liz is passionate about empowering persons with Albinism and also creating an accurate and positive perspective of Albinism in the media. She has four adult children and lives in South Australia with her husband. In January 2020 Liz joined the Secretariat of the Global Albinism Alliance – Pilot.
Julie is enthusiastic about sharing her lived understanding of albinism with others in the AFA community and is also the ACT AFA representative.
In her professional life Julie has been an ABC Broadcaster and a primary school teacher. She is now semi retired working when it suits her. Julie lives in Canberra and is married with two adult children.
Julie says she is both legally blind and legally blonde. Julie’s attitude to her visual disability is to find a way around the problems it presents, though she hasn’t cracked driving yet. Roll on driverless cars!
Annette Van Gent
Annette has OCA and nystagmus, and was diagnosed with Albinism as a baby. Annette is committed to working towards challenging myths and stereotypes about Albinism, and promoting an accurate and positive understanding of people with Albinism. Annette enjoys meeting and supporting other people with Albinism and their families. Annette lives in Sydney.
Glen has OCA and Nystagmus and was diagnosed with Albinism as a baby. Glen has an interest in technology and how it can be used to make life easier for people with albinism. He is from Victoria and is one of our previous conference convenors.
Conference Convenor 2022
Ted has OCA and Nystagmus and was diagnosed with Albinism as a baby. Ted enjoys meeting and assisting new parents of children with Albinism. Ted who lives in Sydney, has been an office bearer for many years and is one of two NSW AFA representatives.
Special Projects and Webmaster
Sandra is grandmother to three children with Albinism. She is the Victorian AFA Representative and also currently the Webmaster. She is passionate about providing opportunities for the albinism community to meet, provide support, share information and most importantly to act as role models for children with albinism.
Jennifer was diagnosed with albinism as a 3-month-old. Until recently she had never met anyone else with albinism and now has found a whole new family. She is a strong advocate for equal opportunities for people with disabilities and strives to ensure that people are able to achieve their full potential in life. Jennifer lives in Darwin and is the Northern Territory AFA representative.
Kieran has ocular albinism. He was an active member of the Melbourne 2017 Conference committee and has now also joined our conference committee this year. He believes in giving everything a go and has ben an excellent role model for our kids, through his tertiary study and involvement in team and outdoor sports.
Jessica has recently resigned as she felt she no longer had the time to be a true committee member. She has a new baby and two primary aged boys – a big enough job at any time. We wish to thank Jess for her contribution to the committee over the past few years and hope that she will join us again in the future as her boys grow. In the meantime she is going to support the Vic rep when we hold events again.
We are seeking people to assist in the running of the AFA, if you have skills that you feel would be valuable to the fellowship or would simply love to give it a go, we want to hear from you. Contact us now!
Phone: 1300 22 16 19
President: Elizabeth Beales Email
Vice President: Julie Derrett: firstname.lastname@example.org
Secretary: Annette van Gent: email@example.com
Treasurer: Glen Bracegirdle Email
Special Projects: Sandra George: firstname.lastname@example.org
Webmaster: Sandra George: email@example.com
2022 Conference Convenor: Julie Derrett: firstname.lastname@example.org
General Committee: Jennifer Rivett and Kieran O’Brien.
Download AFA Constitution
The AFA stands for self advocacy and we are proud that 7 of our 8 committee members have albinism and one a grandparent of 3 children with albinism.