Elizabeth Beales – President
Elizabeth has OCA and Nystagmus was diagnosed with Albinism at the age of 40. Liz is passionate about empowering persons with Albinism and also creating an accurate and positive perspective of Albinism in the media.
She lives in South Australia with her husband and four children.
Ted Thomas – Treasurer
Ted has OCA and Nystagmus and was diagnosed with Albinism at a baby. Ted is enjoys meeting and assisting new parents of children with Albinism.
Ted will be stepping down from Treasurer in June 2018 so if you are interested in becoming part of the AFA Committee we would very much like to hear from you!
Dannika Brittin – Membership Secretary
Dannika’s connection to Albinism is through her youngest daughter Sophia. Sophia is two years old and was diagnosed with OCA and Nystagmus when she was twelve weeks old.
She is passionate about being involved in changing the perception of people with Albinism and ensuring that parents of newly diagnosed children are given adequate resources and information to help them understand Albinism.
Sandra is grandmother to a 6 year old with Albinism and also one of two Victorian AFA Representatives. She is passionate about providing opportunities for the albinism community to meet, provide support, share information and most importantly to act as role models for children with albinism.
Marie was diagnosed with OCA when she was very small and has been a member of the AFA committee for eight years.
In her spare time she volunteers with the Association for the blind of WA now called VisAbility as a consumer committee member.
We are seeking people to assist in the running of the AFA, if you have skills that you feel would be valuable to the fellowship or would simply love to give it a go, we want to hear from you. Contact us now!
President: Elizabeth Beales Email Phone: 1300 22 16 19
Vice President: Julie Derrett
Secretary: Membership / Correspondence – Dannika Brittin Email
Minutes Secretary – Annette van Gent
Treasurer: Ted Thomas Email
Assistant Secretary / General Committee: Marie Bedford
General Committee: Sandy George, Nicole Tobin Donnelly, Belinda West
The AFA stands for self advocacy and we are proud that 5 of our 9 elected committee members have albinism, 3 are parents of children with albinism and 1 grandparent of a child with albinism.