“Bringing Together Australians with Albinism – First Australasian Albinism Conference”
- 1st National Conference of the Albinism Fellowship of Australia.
Sydney, New South Wales
When: 25th – 27th August, 2006
Venue: Y-Hotel, Sydney
Event specifics: We had 101 registrations from people all over the country, New Zealand, Nigeria, and Papua New Guinea. Almost half of those registered were people with albinism, about a third were parents of people with albinism, and the rest fell into lots of categories including service providers, grandparents, media, and more.
Program Overview: The presentations covered a wide spectrum of albinism related issues, time for discussion and Q and A groups. The social gatherings were also a huge success, we had a lovely dinner at Saigon Bay, Oxford St Darlinghurst Vietnamese restaurant on Friday, and a yummy Italian dinner at Rossini’s Circular Quay on Saturday. We had a huge turn out for these get togethers, with over 45 attending on Saturday night alone. This was the first time that a lot of us had ever been with this many people with the same condition in one room.
The childcare was also successful providing the attendees with the highest level of care for their children. We had 15 kids in care on Saturday, a lot of those having albinism. This service will be something which we will always provide for at our conferences so that the parents can enjoy the event child free.
We received a lot of media coverage which is something that should be ongoing, as we want to keep the word out there about what albinism is and isn’t. We have power in numbers, so get your nose into your local newspapers and ask them to do a story on albinism.
Some media coverage we received include approximately 8 ABC radio interviews, 2UE, 2SER, lots of local radio interviews, The Age Newspaper, Sydney Morning Herald, That’s Life Mag, Woman’s Day, The Express Advocate Gosford, and others!